Patient Advocates do more than raise money—they are active participants in the drug development process. While the ALS Ice Bucket Challenge garnered global attention, lesser-known patient advocates also flex their expertise to drive new treatments and cures. In this episode, we talk with two moms, one who is a patient herself, about their work as partners in research and development, helping bring treatments for two rare diseases to the market.
Speakers:
Susan Ruediger, Founder and Chief Mission Officer, CMT Research Foundation
Nasha Fitter, CEO, FOXG1 Research Foundation
Listen: https://iambio.simplecast.com/episodes/the-surprising-role-of-patient-advocates-in-drug-development
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